Resilience And Parenting Stress For Mothers Who Have Children With Autism Disorder During The COVID-19 Pandemic In Indonesia

Fika Nur Indriasari(1*), Prima Daniyati Kusuma(2)


(1) Program Studi Ners, STIKES Notokusumo Yogyakarta
(2) Program Studi Ners, STIKES Notokusumo Yogyakarta
(*) Corresponding Author

Abstract


The COVID-19 pandemic has created a risk in families, especially for those with children with special needs. An inappropriate response to the impact of the pandemic has the potential to make the existing condition worse. The implementation of social restrictions causes all activities to be carried out at home, both working and studying. The positive thing is that parents have more time to take care of their children. However, there are also parents who complain of fatigue and find it difficult, especially those who have children with special needs such as autism. The closure of treatment centers such as speech therapy and physical and social skills has an impact on the development of their basic skills. This is a challenge for parents in raising them in the current situation. The aim of this study was to understand the influence of resilience towards parenting stress on mothers of children with autism disorder in the COVID-19 pandemic. The research design used was cross-sectional. The population in this study were mothers of a child with autism disorder who attended the Pembina Special School in Yogyakarta, Indonesia. The sampling technique used was total sampling. Linear regression analysis was used in the study. The study result showed p-value 0.023 < 0.05, which means that there is an influence on the level of resilience with parenting stress experienced by mothers who have children with autism disorder during the COVID-19 pandemic. The resilience level of mothers was at a moderate level, although mothers’ parenting stress was low. Parenting guidance and assistance for children with autism disorder needs to be done. This aims to improve coping strategies and family resilience during the COVID-19 pandemic.

Keywords


Autism Disorder; Children; Covid-19 Pandemic; Parenting Stress; Resilience

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References


Tarnoto N, Nuryana Z. Digital Intervention and Peer-Support Group to Promote Mental Health of Children and Adolescents During COVID-19: Practical Guidelines From Indonesia. Asia-Pacific Journal of Public Health 2022:4–5. https://doi.org/10.1177/10105395221129104.

Daulay N. Home education for children with autism spectrum disorder during the COVID-19 pandemic: Indonesian mothers experience. Research in Developmental Disabilities 2021;114:103954. https://doi.org/10.1016/j.ridd.2021.103954.

Indonesian Pediatrician Association. Pess Conference Perhimpunan 5 Profesi Dokter Melonjaknya Kasus COVID‐19 di Indonesia (Press Conference of the Association of 5 Medical Professions Regarding High COVID‐19 Cases in Indonesia). Jakarta: 2021.

Republik Indonesia. Indonesian Law No. 24 on Disaster Management. Indonesia: 2007.

Chen S, Chen S, Li X, Ren J. Mental Health of Parents of Special Needs Children in China during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health 2020;17:9519. https://doi.org/10.3390/ijerph17249519.

Blakeley-Smith A, Reaven J, Ridge K, Hepburn S. Parent-child agreement of anxiety symptoms in youth with autism spectrum disorders. Research in Autism Spectrum Disorders 2012;6:707–16. https://doi.org/10.1016/j.rasd.2011.07.020.

Sengupta K, Lobo L, Krishnamurthy V. Educational and Behavioral Interventions in Management of Autism Spectrum Disorder. Indian Journal of Pediatrics 2015;84:61–7. https://doi.org/10.1007/s12098-015-1967-0.

Jenaabadi H. The study and comparison of stress levels and coping strategies in parents of exceptional ( mentally retarded , blind and deaf ) and normal children in Zahedan. Procedia - Social and Behavioral Sciences 2014;114:197–202. https://doi.org/10.1016/j.sbspro.2013.12.684.

Shyam R, Govil D. Stress and Family Burden in Mothers of Children with Disabilities Objectives : 2014;1:152–9.

McLean S, Halstead EJ. Resilience and stigma in mothers of children with emotional and behavioural difficulties. Research in Developmental Disabilities 2021;108:103818. https://doi.org/10.1016/j.ridd.2020.103818.

Taylor ZE, Conger RD. Promoting strengths and resilience in Single-Mother families. Child Development 2017;88:350–8. https://doi.org/10.1111/cdev.12741.

Ozturk Y, Riccadonna S, Venuti P. Parenting dimensions in mothers and fathers of children with Autism Spectrum Disorders. Research in Autism Spectrum Disorders 2014;8:1295–306. https://doi.org/10.1016/j.rasd.2014.07.001.

Smith BW, Dalen J, Wiggins K, Tooley E, Christopher P, Bernard J. The brief resilience scale: Assessing the ability to bounce back. International Journal of Behavioral Medicine 2008;15:194–200. https://doi.org/10.1080/10705500802222972.

Abidin. Parenting stress index 3rd edition: Professional manual. 1995.

Gamsiz ED, Viscidi EW, Frederick AM, Nagpal S, Sanders SJ, Murtha MT, et al. Intellectual disability is associated with increased runs of homozygosity in simplex autism. American Journal of Human Genetics 2013;93:103–9. https://doi.org/10.1016/j.ajhg.2013.06.004.

Miranda A, Mira A, Berenguer C, Rosello B, Baixauli I. Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Frontiers in Psychology 2019;10:464. https://doi.org/10.3389/fpsyg.2019.00464.

Kido K, Fujita K. Correlation between Child Behavior and Depression in Mother with Autism Spectrum Disorders Child. Journal of Maternal and Child Health 2021;06:475–85. https://doi.org/10.26911/thejmch.2021.06.04.09.

Rajgariah R, Malenahalli S, Venkatesh K. Parenting stress and coping strategies adopted among working and non- working mothers and its association with socio-demographic variables : A cross-sectional study. Clinical Epidemiology and Global Health 2021;9:191–5. https://doi.org/10.1016/j.cegh.2020.08.013.

Gloria. Maintaining Good Mental Health While at Home with Positive Family Activities. 2020.

Gayatri M, Irawaty DK. Family Resilience during COVID-19 Pandemic : A Literature Review. The Family Journal: Counseling and Therapy for Couple and Families 2022;30:132–8. https://doi.org/10.1177/10664807211023875.

Papadopoulos D. Mothers’ experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Sciences 2021;11:1–16. https://doi.org/10.3390/brainsci11030309.

Fuentes J, Hervás A, Howlin P, Asd E, Party W. ESCAP practice guidance for autism : a summary of evidence based recommendations for diagnosis and treatment. European Child & Adolescent Psychiatry 2021;30:961–84. https://doi.org/10.1007/s00787-020-01587-4.

Ilias K, Cornish K, Kummar AS, Park MSA, Golden KJ. Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in Southeast Asia: A systematic review. Frontiers in Psychology 2018;9. https://doi.org/10.3389/fpsyg.2018.00280.

Alhuzimi T. Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia. Research in Developmental Disabilities 2021;108:103822. https://doi.org/10.1016/j.ridd.2020.103822.

Brooks JB. The Process of Parenting. 9th ed. New York, USA: Mc Graw Hill; 2013.

Parkes A, Sweeting H, Wight D. Parenting stress and parent support among mothers with high and low education. Journal of Family Psychology 2015;29:907–18. https://doi.org/10.1037/fam0000129.

Willner P, Rose J, Stenfert Kroese B, Murphy GH, Langdon PE, Clifford C, et al. Effect of the COVID-19 pandemic on the mental health of carers of people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 2020;33:1523–33. https://doi.org/10.1111/jar.12811.


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DOI: https://doi.org/10.26714/mki.7.3.2024.235-242

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